I’ll never forget the day when the doctor told me about Jakob’s diagnosis. The combined feelings of being scared, confused and sad were overwhelming.
My special needs journey started when my son, Jakob, turned 2½ and was diagnosed with autism. Immediately, my mind started racing ahead thinking about his future. Will he be able to go to school? Will he have a job? Go to college? Live Independently…? It took some time before I started to focus on the things that I can do for him right then. I know as parents of special kids we have a lot to deal with and on my journey, I was sometimes confused and made mistakes. That’s why I developed the Life Care Tool Kit™ to help you figure out what you can be doing right now no matter what stage of the journey you are on.
Develop a plan with early intervention to get services - speech, physical therapy, occupational therapy, Applied Behavioral Analysis (ABA)...
Put together an estate plan that names someone as a guardian for your children in case you and/or your spouse prematurely pass away.
It might also make sense to have a special needs trust.
Make sure that you have the right amount of life insurance in place in the event something happens to you.
Develop a plan with your school district to get the services you think your child needs.
Consider applying for Medicaid (MassHealth) for your child to cover additional medical expenses/therapies.
Create or review your estate plan. Sometimes the people you chose to play critical roles (guardians, trustees, executor ...) in your plan no longer make sense.
Put together a detailed road map about your child and what you want for them (Letter of Intent).
Review your overall financial plan. With the addition of unexpected expenses, the future you envisioned might look differently.
Think about alternative ways you can save for your child's current and future needs.
Review your life insurance plan. Depending on your child's long term needs you might want to consider having permanent life insurance.
Request a pre-IEP Transition Planning meeting and start thinking about post-secondary school goals for your child.
Ask the school to make a 688 referral in order to start the process of getting eligible for various government services.
Your vision of their future might be clearer and will necessitate some changes to your financial plan. You should consider that you might have to provide some level of financial support for your entire life.
Review or update your estate plan and make sure you have considered a special needs trust.
Review your overall financial plan. With the addition of unexpected expenses, the future you envisioned might look differently.
Review your life insurance since this might be a good funding source for your special needs trust.
Put together a detailed road map about your child and what you want for them (Letter of Intent).
Start building a team of people to help you. We call this a Circle of Support. It might include family, friends, teachers, social workers. In the beginning it might be just one other person but the idea is to grow this over time.
Prior to turning 18 you need to consider if guardianship is right for your family.
You should consider applying for supplemental security income (SSI) and learn about eligibility.
Ask the school to make a 688 referral in order to start the process of getting eligible for various government services.
Start thinking about what type of housing your child will be living in the future and apply for a section 8 voucher to help with funding. It could take many years to get it so do it now!
Review or update your estate plan and make sure you have considered a special needs trust.
Review your life insurance since this might be a good funding source for your special needs trust.
Put together a detailed road map about your child and what you want for them (Letter of Intent).
Prior to turning 22, you want to meet with various state agencies who will be providing adult services to your child.
Develop a housing strategy. They might not be moving out anytime soon but it's never too soon or too late to plan and apply for a Section 8 voucher.
Review or update your estate plan and make sure you have considered a special needs trust.
Review your life insurance since this might be a good funding source for your special needs trust.
Put together a detailed road map about your child and what you want for them (Letter of Intent).
Think about alternative ways you can save for your child's current and future needs.
Just because school is ending doesn't mean that your child will stop learning. Think about what types of skills you want to keep working on and who can help.
Meet with your Personal Financial Coach and tell us about what’s important to you.
We will spend some time talking about your child’s strengths and challenges. This will give us a better understanding how government benefits fit into your plan.
Make sure we have an accurate financial picture of you and sign up for your Personal Financial Portal.
We get a team of multi-disciplined professionals together who will be involved in your plan.
We analyze everything from your investments to your estate plan and then we stress test to give you personalized recommendations.
We will discuss our observations and results with you to get your feedback and go over different options to make sure the plan makes sense to you.
We will help you prioritize what to do first and make sure that your plan gets done. Since we are product agnostic, we can search for the products that best fit you.
We will continue to work with you and monitor the plan. Sometimes even the best mapped out plans veer off course.
This information is provided as a general resource for informational purposes only. For additional information or answers to individual questions about government assistance programs, contact the applicable program or plan administrator. River Financial Group, LLC, its agents and affiliates do not provide tax, legal or accounting advice. Please consult your own professionals for tax, legal and accounting advice and prior to taking any related planning action.